2024
Disentangling gender, sex, and biology: a mixed methods study of gender identity data collection tools
Alpert A, Hernandez T, Ruddick R, Manzano C, Adams S, Rivers L, Ramos-Pibernus A, Sevelius J, Poteat T, Obedin-Maliver J, Cicero E, Radix A, Lett E, Operario D, Chapman B, Wittink M, Cupertino A, Murchison G, Nunez-Smith M, Cartujano-Barrera F. Disentangling gender, sex, and biology: a mixed methods study of gender identity data collection tools. Patient Education And Counseling 2024, 130: 108473. PMID: 39471780, DOI: 10.1016/j.pec.2024.108473.Peer-Reviewed Original ResearchTGD peopleGender identity questionTGD participantsConflation of sexConcepts of sexIdentical questionsTGD adultsGender identityCommunity membersTGDContextual factorsQualitative dataGenderDecrease stigmaPeopleData collection toolTemplate analysisQuantitative dataAnalyzed quantitative dataCisgenderismCollective preferencesQuestionsTransgenderMedical careMixing methodDoing Justice: Ethical Considerations Identifying and Researching Transgender and Gender Diverse People in Insurance Claims Data
Alpert A, Babbs G, Sanaeikia R, Ellison J, Hughes L, Herington J, Dembroff R. Doing Justice: Ethical Considerations Identifying and Researching Transgender and Gender Diverse People in Insurance Claims Data. Journal Of Medical Systems 2024, 48: 96. PMID: 39394534, PMCID: PMC11469973, DOI: 10.1007/s10916-024-02111-w.Peer-Reviewed Original ResearchConceptsTGD individualsSelf-identificationHealth of transgenderGender diverse peopleGender self-identificationTGD peopleTGD populationsDiverse peopleEpistemic injusticeTransgenderTGDGenderHealth researchHealth services researchEthical complexitiesPeopleServices researchClaims-based algorithmInjusticeInsuranceHealthIndividualsEthical considerationsResearchClaims
2023
Methodologic Approaches for Using Electronic Medical Records to Identify Experiences of Violence in Transgender and Cisgender People: Closing the Gap Between Diagnostic Coding and Lived Experiences
Alpert A, Sayegh S, Strawderman M, Cunliffe S, Griggs J, Cerulli C. Methodologic Approaches for Using Electronic Medical Records to Identify Experiences of Violence in Transgender and Cisgender People: Closing the Gap Between Diagnostic Coding and Lived Experiences. Medical Care 2023, 61: 384-391. PMID: 37072686, PMCID: PMC10168107, DOI: 10.1097/mlr.0000000000001852.Peer-Reviewed Original ResearchConceptsElectronic medical record dataElectronic medical recordsExperiences of violenceCisgender peopleTransgender peopleCisgender cohortRates of violenceMedical recordsImplement effective interventionsCross-sectional studyIdentified violenceStop violenceTransgenderImprove careViolenceScreening questionsCisgenderUpstate New YorkDiagnostic codesEffective interventionsDiagnosis codesRegional referral centerMedical sequelaeMcNemar testCohortDisparities in health condition diagnoses among aging transgender and cisgender medicare beneficiaries, 2008-2017
Hughto J, Varma H, Babbs G, Yee K, Alpert A, Hughes L, Ellison J, Downing J, Shireman T. Disparities in health condition diagnoses among aging transgender and cisgender medicare beneficiaries, 2008-2017. Frontiers In Endocrinology 2023, 14: 1102348. PMID: 36992801, PMCID: PMC10040837, DOI: 10.3389/fendo.2023.1102348.Peer-Reviewed Original ResearchConceptsHealth condition diagnosisCisgender individualsMedicare beneficiariesHealth diagnosisProportion of transgenderMedicare fee-for-service dataGender differencesModifiable risk factorsTrans masculineTransgender individualsTransgender populationCisgender sampleCisgender maleTransgenderMonths of enrollmentCisgenderNon-HispanicCondition diagnosisBetween-group gender differencesDocumented disparitiesNational estimatesHealth conditionsAnalytic sampleEnrollment lengthHighest burden
2022
Addressing Barriers to Clinical Trial Participation for Transgender People With Cancer to Improve Access and Generate Data
Alpert A, Brewer J, Adams S, Rivers L, Orta S, Blosnich J, Miedlich S, Kamen C, Dizon D, Pazdur R, Beaver J, Fashoyin-Aje L. Addressing Barriers to Clinical Trial Participation for Transgender People With Cancer to Improve Access and Generate Data. Journal Of Clinical Oncology 2022, 41: 1825-1829. PMID: 36302204, PMCID: PMC10082226, DOI: 10.1200/jco.22.01174.Peer-Reviewed Original ResearchGender- and Sexual Orientation- Based Inequities: Promoting Inclusion, Visibility, and Data Accuracy in Oncology.
Alpert A, Scout N, Schabath M, Adams S, Obedin-Maliver J, Safer J. Gender- and Sexual Orientation- Based Inequities: Promoting Inclusion, Visibility, and Data Accuracy in Oncology. American Society Of Clinical Oncology Educational Book 2022, 42: 1-17. PMID: 35658501, DOI: 10.1200/edbk_350175.Peer-Reviewed Original ResearchConceptsTransgender identityTransgender peopleGender minoritiesImpact of stigmaGender identitySexual orientationSGM peopleStructural discriminationSGM patientsSGMPromote inclusionGenderSystem changesU.S. populationOncology settingPeopleStigmaIdentityGenderqueerQueerTransgenderAgenderComprehensive data collectionCancer disparitiesInequalityImproving Data-Driven Methods to Identify and Categorize Transgender Individuals by Gender in Insurance Claims Data
Hughto J, Hughes L, Yee K, Downing J, Ellison J, Alpert A, Jasuja G, Shireman T. Improving Data-Driven Methods to Identify and Categorize Transgender Individuals by Gender in Insurance Claims Data. LGBT Health 2022, 9: 254-263. PMID: 35290746, PMCID: PMC9150133, DOI: 10.1089/lgbt.2021.0433.Peer-Reviewed Original ResearchConceptsTransgender peopleGender categoriesTransgender individualsSample of transgender individualsChronic health conditionsTransgender populationTransgender samplesSex-specific conditionsOdds of post-traumatic stress disorderDrug use disordersHealth conditionsHealth disparitiesGender categorizationGenderCensus regionPeopleUse disorderTransgenderInsuranceAlcohol use disorderPost-traumatic stress disorderCensusIndividualsAtherosclerotic cardiovascular disordersLogistic regression
2021
Identification of Transgender People With Cancer in Electronic Health Records: Recommendations Based on CancerLinQ Observations.
Alpert A, Komatsoulis G, Meersman S, Garrett-Mayer E, Bruinooge S, Miller R, Potter D, Koronkowski B, Stepanski E, Dizon D. Identification of Transgender People With Cancer in Electronic Health Records: Recommendations Based on CancerLinQ Observations. JCO Oncology Practice 2021, 17: e336-e342. PMID: 33705680, DOI: 10.1200/op.20.00634.Peer-Reviewed Original ResearchConceptsElectronic health recordsGender identity dataTransgender identityTransgender peopleHealth recordsNational concerted effortDatabase of clinical dataCancer prevalenceCancerLinQHealthcare environmentTransgender populationInclusion criteriaTransgenderFemale genderSystemic effortsOutcome dataMale genderCurrent data resourcesTotal populationCategory 2Criterion 2GenderUnited StatesIdentityPeople
2020
What Oncologists Should Know About Treating Sexual and Gender Minority Patients With Cancer
Quinn G, Alpert A, Sutter M, Schabath M. What Oncologists Should Know About Treating Sexual and Gender Minority Patients With Cancer. JCO Oncology Practice 2020, 16: 309-316. PMCID: PMC7291539, DOI: 10.1200/op.20.00036.Peer-Reviewed Original ResearchGender identitySexual orientationHealth disparitiesCollection of sexual orientationSpectrum of sexual orientationQuality of careGender minority patientsGender minoritiesLack of comfortProviders' lackMinority patientsClinical encountersWelcoming environmentNational studyGenderSOGIMedical recordsClinical reviewIdentityDisparitiesHealthLGBLGBTQQueerTransgenderIdentification of transgender people with cancer in electronic health records (EHR): Recommendations based on CancerLinQ observations.
Alpert A, Bruinooge S, Dizon D, Koronkowski B, Garrett-Mayer E, Meersman S, Miller R, Potter D, Komatsoulis G. Identification of transgender people with cancer in electronic health records (EHR): Recommendations based on CancerLinQ observations. Journal Of Clinical Oncology 2020, 38: e19046-e19046. DOI: 10.1200/jco.2020.38.15_suppl.e19046.Peer-Reviewed Original ResearchElectronic health recordsTransgender identityTransgender peopleMultiple electronic health recordsTransition-related surgeryGender dataNon-binary genderNational concerted effortAmerican Society of Clinical OncologyHealth recordsGender minoritiesTransgender populationEHR dataCancer prevalenceReviewed medical recordsCancerLinQOncology practiceCancer diagnosisInclusion criteriaFemale genderMedical recordsCurrent data resourcesOutcome dataData elementsTransgender