2024
Associations between violence, distress, and cancer in transgender and non-transgender people.
Alpert A, Sayegh S, Cunliffe S, Sevelius J, Operario D, Pachankis J, Irwin M, Cerulli C, Griggs J, Strawderman M. Associations between violence, distress, and cancer in transgender and non-transgender people. Journal Of Clinical Oncology 2024, 42: 10566-10566. DOI: 10.1200/jco.2024.42.16_suppl.10566.Peer-Reviewed Original ResearchCancer risk factorsDiagnosis codesRisk factorsRates of violenceElectronic medical record dataTransgender peopleCross-sectional cohort studyMedical record dataGender identity informationGender identityIncreased cancer morbidityBias-corrected bootstrap confidence intervalsAssess distressProbability of cancerScreening questionsCancer riskCancer morbidityChi-square testComparison of violenceExperiences of violenceCohort studyAcademic hospitalVariable of violenceIndirect pathsRecord data
2023
Transgender People’s Experiences Sharing Information With Clinicians: A Focus Group–Based Qualitative Study
Alpert A, Mehringer J, Orta S, Hernandez T, Redwood E, Rivers L, Manzano C, Ruddick R, Adams S, Sevelius J, Belanger E, Operario D, Griggs J. Transgender People’s Experiences Sharing Information With Clinicians: A Focus Group–Based Qualitative Study. The Annals Of Family Medicine 2023, 21: 408-415. PMID: 37748898, PMCID: PMC10519763, DOI: 10.1370/afm.3010.Peer-Reviewed Original ResearchConceptsCommunity-based participatory research approachFocus groupsSafety of clinical careTransgender peopleFamily medicine cliniciansInterpretive description methodologyParticipatory research approachQualitative focus groupsData collection toolSuboptimal careTransgender people's experiencesSubstandard careHealth informationClinical encountersDescriptive methodologyPeer debriefingClinical careClinicians' questionsQualitative studyPurposive samplingMedical cultureCareCommunity membersTransgender adultsMedical systemMethodologic Approaches for Using Electronic Medical Records to Identify Experiences of Violence in Transgender and Cisgender People: Closing the Gap Between Diagnostic Coding and Lived Experiences
Alpert A, Sayegh S, Strawderman M, Cunliffe S, Griggs J, Cerulli C. Methodologic Approaches for Using Electronic Medical Records to Identify Experiences of Violence in Transgender and Cisgender People: Closing the Gap Between Diagnostic Coding and Lived Experiences. Medical Care 2023, 61: 384-391. PMID: 37072686, PMCID: PMC10168107, DOI: 10.1097/mlr.0000000000001852.Peer-Reviewed Original ResearchConceptsElectronic medical record dataElectronic medical recordsExperiences of violenceCisgender peopleTransgender peopleCisgender cohortRates of violenceMedical recordsImplement effective interventionsCross-sectional studyIdentified violenceStop violenceTransgenderImprove careViolenceScreening questionsCisgenderUpstate New YorkDiagnostic codesEffective interventionsDiagnosis codesRegional referral centerMedical sequelaeMcNemar testCohort
2022
Addressing Barriers to Clinical Trial Participation for Transgender People With Cancer to Improve Access and Generate Data
Alpert A, Brewer J, Adams S, Rivers L, Orta S, Blosnich J, Miedlich S, Kamen C, Dizon D, Pazdur R, Beaver J, Fashoyin-Aje L. Addressing Barriers to Clinical Trial Participation for Transgender People With Cancer to Improve Access and Generate Data. Journal Of Clinical Oncology 2022, 41: 1825-1829. PMID: 36302204, PMCID: PMC10082226, DOI: 10.1200/jco.22.01174.Peer-Reviewed Original ResearchConceptsClinical trial participationAddress barriersTrial participantsTransgender peopleParticipantsClinicTransgenderGender- and Sexual Orientation- Based Inequities: Promoting Inclusion, Visibility, and Data Accuracy in Oncology.
Alpert A, Scout N, Schabath M, Adams S, Obedin-Maliver J, Safer J. Gender- and Sexual Orientation- Based Inequities: Promoting Inclusion, Visibility, and Data Accuracy in Oncology. American Society Of Clinical Oncology Educational Book 2022, 42: 1-17. PMID: 35658501, DOI: 10.1200/edbk_350175.Peer-Reviewed Original ResearchConceptsTransgender identityTransgender peopleGender minoritiesImpact of stigmaGender identitySexual orientationSGM peopleStructural discriminationSGM patientsSGMPromote inclusionGenderSystem changesU.S. populationOncology settingPeopleStigmaIdentityGenderqueerQueerTransgenderAgenderComprehensive data collectionCancer disparitiesInequalityAssociations between interpersonal violence and cancer risk factors for transgender and cisgender people.
Alpert A, Sayegh S, Strawderman M, Cunliffe S, Cupertino A, Griggs J, Cerulli C. Associations between interpersonal violence and cancer risk factors for transgender and cisgender people. Journal Of Clinical Oncology 2022, 40: 6516-6516. DOI: 10.1200/jco.2022.40.16_suppl.6516.Peer-Reviewed Original ResearchCancer risk factorsRates of smokingCisgender peopleRisk factorsTransgender peopleRobust Poisson regression modelsDecrease socioeconomic disparitiesCancer prevention researchPoisson regression modelsRisk of cancerInterpersonal violenceFollow-up timeSocioeconomic disparitiesPrevalence ratiosPrevention researchRates of interpersonal violenceExperiences of violenceLife courseSmokingSignificantly higher ratesBMIExposure to interpersonal violenceRegression modelsOncology communityStatistically significant differenceCancer risk factors and cancer in transgender versus cisgender people: Real-world data from a tertiary health care institution.
Alpert A, Sayegh S, Strawderman M, Cunliffe S, Cupertino A, Cerulli C, Griggs J. Cancer risk factors and cancer in transgender versus cisgender people: Real-world data from a tertiary health care institution. Journal Of Clinical Oncology 2022, 40: 6538-6538. DOI: 10.1200/jco.2022.40.16_suppl.6538.Peer-Reviewed Original ResearchCancer risk factorsElectronic health recordsBody mass indexPrevalence of cancerHuman immunodeficiency virusCisgender peopleRisk factorsElectronic health record fieldsInstitutional electronic health recordsAssessed body mass indexTransgender peopleTertiary health care institutionHuman papilloma virusRates of smokingHealth care institutionsPremalignant lesionsGender identity dataYears of follow-upPrevalence of premalignant lesionsTobacco cessationHealth recordsStructural stigmaChi-square testSmoking statusTransmission of human immunodeficiency virusExperiences of Transgender People Reviewing Their Electronic Health Records, a Qualitative Study
Alpert A, Mehringer J, Orta S, Redwood E, Hernandez T, Rivers L, Manzano C, Ruddick R, Adams S, Cerulli C, Operario D, Griggs J. Experiences of Transgender People Reviewing Their Electronic Health Records, a Qualitative Study. Journal Of General Internal Medicine 2022, 38: 970-977. PMID: 35641720, PMCID: PMC10039220, DOI: 10.1007/s11606-022-07671-6.Peer-Reviewed Original ResearchConceptsElectronic health recordsExperiences of transgender peopleHealth recordsAudio-recordings of focus groupsFocus groupsElectronic health record documentationPatients immediate accessTransgender peopleInterpretive description methodologyPatient-clinician rapportPatient-clinician relationshipCommunity-engaged researchResultsFour themesDesignQualitative studyOpenNotes movementQuality careDigital audio recordingsCentury Cures ActClinician notesStigmatized patientsDescriptive methodologyReduce harmSnowball samplingPurposive samplingCures ActImproving Data-Driven Methods to Identify and Categorize Transgender Individuals by Gender in Insurance Claims Data
Hughto J, Hughes L, Yee K, Downing J, Ellison J, Alpert A, Jasuja G, Shireman T. Improving Data-Driven Methods to Identify and Categorize Transgender Individuals by Gender in Insurance Claims Data. LGBT Health 2022, 9: 254-263. PMID: 35290746, PMCID: PMC9150133, DOI: 10.1089/lgbt.2021.0433.Peer-Reviewed Original ResearchConceptsTransgender peopleGender categoriesTransgender individualsSample of transgender individualsChronic health conditionsTransgender populationTransgender samplesSex-specific conditionsOdds of post-traumatic stress disorderDrug use disordersHealth conditionsHealth disparitiesGender categorizationGenderCensus regionPeopleUse disorderTransgenderInsuranceAlcohol use disorderPost-traumatic stress disorderCensusIndividualsAtherosclerotic cardiovascular disordersLogistic regression
2021
“I'm a transgender man… I have to quit smoking for treatment and surgery”: Describing the experience of a Latino transgender man during his attempt to quit smoking
Cartujano-Barrera F, Cox L, Catley D, Shah Z, Alpert A, Cupertino A. “I'm a transgender man… I have to quit smoking for treatment and surgery”: Describing the experience of a Latino transgender man during his attempt to quit smoking. Explore: The Journal Of Science & Healing 2021, 19: 131-135. PMID: 34823998, PMCID: PMC9110554, DOI: 10.1016/j.explore.2021.11.005.Peer-Reviewed Original ResearchConceptsTransgender menQuit smokingMessaging interventionMobile interventionsSmoking cessation randomized controlled trialTransgender peopleGender-affirming surgeryGender identitySmoking cessation interventionsLow social supportSelf-reported abstinenceSelf-reported cigarette useRandomized controlled trialsCessation interventionsAffirmation surgeryLatino smokersIntervention periodSocial supportCigarette useHigh satisfactionText messagesControlled trialsSmokingGenderInterventionI’m not putting on that floral gown: Enforcement and resistance of gender expectations for transgender people with cancer
Alpert A, Gampa V, Lytle M, Manzano C, Ruddick R, Poteat T, Quinn G, Kamen C. I’m not putting on that floral gown: Enforcement and resistance of gender expectations for transgender people with cancer. Patient Education And Counseling 2021, 104: 2552-2558. PMID: 33745786, PMCID: PMC9320277, DOI: 10.1016/j.pec.2021.03.007.Peer-Reviewed Original ResearchConceptsOncology careGroup interviewsTransgender peopleInterpretive description approachAnalyzed verbatim transcriptsExperiences of transgender peopleCancer careAssess barriersCare accessVerbatim transcriptsCancer objectivesDecrease barriersPeer debriefingMember checkingPatient autonomyImpact transgender peopleGender expectationsCareOncology spaceTreating peopleDescriptive approachPhysiciansThemesCliniciansInterviewsIdentification of Transgender People With Cancer in Electronic Health Records: Recommendations Based on CancerLinQ Observations.
Alpert A, Komatsoulis G, Meersman S, Garrett-Mayer E, Bruinooge S, Miller R, Potter D, Koronkowski B, Stepanski E, Dizon D. Identification of Transgender People With Cancer in Electronic Health Records: Recommendations Based on CancerLinQ Observations. JCO Oncology Practice 2021, 17: e336-e342. PMID: 33705680, DOI: 10.1200/op.20.00634.Peer-Reviewed Original ResearchConceptsElectronic health recordsGender identity dataTransgender identityTransgender peopleHealth recordsNational concerted effortDatabase of clinical dataCancer prevalenceCancerLinQHealthcare environmentTransgender populationInclusion criteriaTransgenderFemale genderSystemic effortsOutcome dataMale genderCurrent data resourcesTotal populationCategory 2Criterion 2GenderUnited StatesIdentityPeople
2020
Identification of transgender people with cancer in electronic health records (EHR): Recommendations based on CancerLinQ observations.
Alpert A, Bruinooge S, Dizon D, Koronkowski B, Garrett-Mayer E, Meersman S, Miller R, Potter D, Komatsoulis G. Identification of transgender people with cancer in electronic health records (EHR): Recommendations based on CancerLinQ observations. Journal Of Clinical Oncology 2020, 38: e19046-e19046. DOI: 10.1200/jco.2020.38.15_suppl.e19046.Peer-Reviewed Original ResearchElectronic health recordsTransgender identityTransgender peopleMultiple electronic health recordsTransition-related surgeryGender dataNon-binary genderNational concerted effortAmerican Society of Clinical OncologyHealth recordsGender minoritiesTransgender populationEHR dataCancer prevalenceReviewed medical recordsCancerLinQOncology practiceCancer diagnosisInclusion criteriaFemale genderMedical recordsCurrent data resourcesOutcome dataData elementsTransgender