2024
Doing Justice: Ethical Considerations Identifying and Researching Transgender and Gender Diverse People in Insurance Claims Data
Alpert A, Babbs G, Sanaeikia R, Ellison J, Hughes L, Herington J, Dembroff R. Doing Justice: Ethical Considerations Identifying and Researching Transgender and Gender Diverse People in Insurance Claims Data. Journal Of Medical Systems 2024, 48: 96. PMID: 39394534, PMCID: PMC11469973, DOI: 10.1007/s10916-024-02111-w.Peer-Reviewed Original ResearchConceptsTGD individualsSelf-identificationHealth of transgenderGender diverse peopleGender self-identificationTGD peopleTGD populationsDiverse peopleEpistemic injusticeTransgenderTGDGenderHealth researchHealth services researchEthical complexitiesPeopleServices researchClaims-based algorithmInjusticeInsuranceHealthIndividualsEthical considerationsResearchClaims
2023
Prevalence and correlates of current cigarette smoking among transgender women in Argentina
Cartujano-Barrera F, Mejia R, Radusky P, Cardozo N, Duarte M, Fabian S, Caballero R, Zalazar V, Ramos-Pibernus A, Alpert A, Cupertino A, Frola C, Aristegui I. Prevalence and correlates of current cigarette smoking among transgender women in Argentina. Frontiers In Public Health 2023, 11: 1279969. PMID: 38115852, PMCID: PMC10728477, DOI: 10.3389/fpubh.2023.1279969.Peer-Reviewed Original ResearchConceptsGender identity stigmaCurrent cigarette smokingTransgender womenIdentity stigmaAssociated with current cigarette smokingHistory of sex workSubstance useCigarette smokingHazardous drinkingBuenos AiresPrevalence of current cigarette smokingPerceived health statusSexual violenceTransgender individualsSmoking cessation interventionsBaseline dataSex workCisgender womenAssociated with educationSecondary data analysisProspective cohort studyPoliceHazardous alcohol drinkingLogistic regression modelsCessation interventionsTransgender People’s Experiences Sharing Information With Clinicians: A Focus Group–Based Qualitative Study
Alpert A, Mehringer J, Orta S, Hernandez T, Redwood E, Rivers L, Manzano C, Ruddick R, Adams S, Sevelius J, Belanger E, Operario D, Griggs J. Transgender People’s Experiences Sharing Information With Clinicians: A Focus Group–Based Qualitative Study. The Annals Of Family Medicine 2023, 21: 408-415. PMID: 37748898, PMCID: PMC10519763, DOI: 10.1370/afm.3010.Peer-Reviewed Original ResearchConceptsCommunity-based participatory research approachFocus groupsSafety of clinical careTransgender peopleFamily medicine cliniciansInterpretive description methodologyParticipatory research approachQualitative focus groupsData collection toolSuboptimal careTransgender people's experiencesSubstandard careHealth informationClinical encountersDescriptive methodologyPeer debriefingClinical careClinicians' questionsQualitative studyPurposive samplingMedical cultureCareCommunity membersTransgender adultsMedical systemDebunking Sex and Disentangling Gender From Oncology
Alpert A, Rivers L, Manzano C, Ruddick R, Adams S, Obedin-Maliver J, Harvey R, Griggs J, Operario D. Debunking Sex and Disentangling Gender From Oncology. Journal Of Clinical Oncology 2023, 41: 3791-3795. PMID: 37235816, PMCID: PMC10860932, DOI: 10.1200/jco.22.02037.Peer-Reviewed Original ResearchPartnering With Patients and Caregivers in Cancer Care: Lessons From Experiences With Transgender, Hispanic, and Pediatric Populations.
Katz N, Alpert A, Aristizabal M, McDaniels-Davidson C, Sacks B, Sanft T, Chou C, Martinez M. Partnering With Patients and Caregivers in Cancer Care: Lessons From Experiences With Transgender, Hispanic, and Pediatric Populations. American Society Of Clinical Oncology Educational Book 2023, 43: e397264. PMID: 37200592, DOI: 10.1200/edbk_397264.Peer-Reviewed Original ResearchConceptsPediatric populationOncology careFamily-centered careQuality of carePatient populationCancer careCancer morbidityOncology cliniciansClinical trialsEffective patientPatientsCare provisionCancer diagnosisCareHealth careCaregiversCertain populationsUnequal burdenResearch participationCliniciansInequitable accessIndividual needsPopulationMorbidityMortalityThe Value and Process of Inclusion: Using Sensitive, Respectful, and Inclusive Language and Images in NCCN Content.
Freedman-Cass D, Fischer T, Alpert A, Obedin-Maliver J, Kunz P, Koh W, Carlson R. The Value and Process of Inclusion: Using Sensitive, Respectful, and Inclusive Language and Images in NCCN Content. Journal Of The National Comprehensive Cancer Network 2023, 21: 434-441. PMID: 37156485, DOI: 10.6004/jnccn.2023.7025.Peer-Reviewed Original ResearchConceptsCancer careEquitable cancer careEffective cancer careNCCN Clinical Practice GuidelinesClinical practice guidelinesOptimal oncology careRepresentation of diverse populationsCancer informationOncology careAnti-fat biasPractice guidelinesCareDiverse populationsNCCN GuidelinesGoals of equityNCCNHigh-qualityGuidelinesInclusionSexual orientationInclusive languagePatientsNonstigmatizingIndividualsProfessional contentMethodologic Approaches for Using Electronic Medical Records to Identify Experiences of Violence in Transgender and Cisgender People: Closing the Gap Between Diagnostic Coding and Lived Experiences
Alpert A, Sayegh S, Strawderman M, Cunliffe S, Griggs J, Cerulli C. Methodologic Approaches for Using Electronic Medical Records to Identify Experiences of Violence in Transgender and Cisgender People: Closing the Gap Between Diagnostic Coding and Lived Experiences. Medical Care 2023, 61: 384-391. PMID: 37072686, PMCID: PMC10168107, DOI: 10.1097/mlr.0000000000001852.Peer-Reviewed Original ResearchConceptsElectronic medical record dataElectronic medical recordsExperiences of violenceCisgender peopleTransgender peopleCisgender cohortRates of violenceMedical recordsImplement effective interventionsCross-sectional studyIdentified violenceStop violenceTransgenderImprove careViolenceScreening questionsCisgenderUpstate New YorkDiagnostic codesEffective interventionsDiagnosis codesRegional referral centerMedical sequelaeMcNemar testCohortDisparities in health condition diagnoses among aging transgender and cisgender medicare beneficiaries, 2008-2017
Hughto J, Varma H, Babbs G, Yee K, Alpert A, Hughes L, Ellison J, Downing J, Shireman T. Disparities in health condition diagnoses among aging transgender and cisgender medicare beneficiaries, 2008-2017. Frontiers In Endocrinology 2023, 14: 1102348. PMID: 36992801, PMCID: PMC10040837, DOI: 10.3389/fendo.2023.1102348.Peer-Reviewed Original ResearchConceptsHealth condition diagnosisCisgender individualsMedicare beneficiariesHealth diagnosisProportion of transgenderMedicare fee-for-service dataGender differencesModifiable risk factorsTrans masculineTransgender individualsTransgender populationCisgender sampleCisgender maleTransgenderMonths of enrollmentCisgenderNon-HispanicCondition diagnosisBetween-group gender differencesDocumented disparitiesNational estimatesHealth conditionsAnalytic sampleEnrollment lengthHighest burden
2022
Addressing Barriers to Clinical Trial Participation for Transgender People With Cancer to Improve Access and Generate Data
Alpert A, Brewer J, Adams S, Rivers L, Orta S, Blosnich J, Miedlich S, Kamen C, Dizon D, Pazdur R, Beaver J, Fashoyin-Aje L. Addressing Barriers to Clinical Trial Participation for Transgender People With Cancer to Improve Access and Generate Data. Journal Of Clinical Oncology 2022, 41: 1825-1829. PMID: 36302204, PMCID: PMC10082226, DOI: 10.1200/jco.22.01174.Peer-Reviewed Original ResearchGender- and Sexual Orientation- Based Inequities: Promoting Inclusion, Visibility, and Data Accuracy in Oncology.
Alpert A, Scout N, Schabath M, Adams S, Obedin-Maliver J, Safer J. Gender- and Sexual Orientation- Based Inequities: Promoting Inclusion, Visibility, and Data Accuracy in Oncology. American Society Of Clinical Oncology Educational Book 2022, 42: 1-17. PMID: 35658501, DOI: 10.1200/edbk_350175.Peer-Reviewed Original ResearchConceptsTransgender identityTransgender peopleGender minoritiesImpact of stigmaGender identitySexual orientationSGM peopleStructural discriminationSGM patientsSGMPromote inclusionGenderSystem changesU.S. populationOncology settingPeopleStigmaIdentityGenderqueerQueerTransgenderAgenderComprehensive data collectionCancer disparitiesInequalityExperiences of Transgender People Reviewing Their Electronic Health Records, a Qualitative Study
Alpert A, Mehringer J, Orta S, Redwood E, Hernandez T, Rivers L, Manzano C, Ruddick R, Adams S, Cerulli C, Operario D, Griggs J. Experiences of Transgender People Reviewing Their Electronic Health Records, a Qualitative Study. Journal Of General Internal Medicine 2022, 38: 970-977. PMID: 35641720, PMCID: PMC10039220, DOI: 10.1007/s11606-022-07671-6.Peer-Reviewed Original ResearchConceptsElectronic health recordsExperiences of transgender peopleHealth recordsAudio-recordings of focus groupsFocus groupsElectronic health record documentationPatients immediate accessTransgender peopleInterpretive description methodologyPatient-clinician rapportPatient-clinician relationshipCommunity-engaged researchResultsFour themesDesignQualitative studyOpenNotes movementQuality careDigital audio recordingsCentury Cures ActClinician notesStigmatized patientsDescriptive methodologyReduce harmSnowball samplingPurposive samplingCures ActAn international analysis evaluating frontline bendamustine with rituximab in extranodal marginal zone lymphoma
Alderuccio J, Arcaini L, Watkins M, Beaven A, Shouse G, Epperla N, Spina M, Stefanovic A, Sandoval-Sus J, Torka P, Alpert A, Olszewski A, Kim S, Hess B, Gaballa S, Ayyappan S, Castillo J, Argnani L, Voorhees T, Saba R, Chowdhury S, Vargas F, Reis I, Kwon D, Alexander J, Zhao W, Edwards D, Martin P, Cencini E, Kamdar M, Link B, Logothetis C, Herrera A, Friedberg J, Kahl B, Luminari S, Zinzani P, Lossos I. An international analysis evaluating frontline bendamustine with rituximab in extranodal marginal zone lymphoma. Blood Advances 2022, 6: 2035-2044. PMID: 35196377, PMCID: PMC9006265, DOI: 10.1182/bloodadvances.2021006844.Peer-Reviewed Original ResearchConceptsProgression-free survivalEastern Cooperative Oncology GroupMALT-IPIRituximab maintenanceOverall survivalHerpes zosterAssociated with longer progression-free survivalPerformance status 0 to 1Associated with shorter progression-free survivalHeterogeneous non-Hodgkin lymphomasPresence of B symptomsLonger progression-free survivalShorter progression-free survivalExtranodal marginal zone lymphomaOccurrence of herpes zosterMarginal zone lymphomaInternational Prognosis IndexNon-Hodgkin's lymphomaAdvanced-stage diseaseCooperative Oncology GroupStandard-of-careAdverse prognosis factorsAssociated with occurrenceImpact OSUpfront regimensImproving Data-Driven Methods to Identify and Categorize Transgender Individuals by Gender in Insurance Claims Data
Hughto J, Hughes L, Yee K, Downing J, Ellison J, Alpert A, Jasuja G, Shireman T. Improving Data-Driven Methods to Identify and Categorize Transgender Individuals by Gender in Insurance Claims Data. LGBT Health 2022, 9: 254-263. PMID: 35290746, PMCID: PMC9150133, DOI: 10.1089/lgbt.2021.0433.Peer-Reviewed Original ResearchConceptsTransgender peopleGender categoriesTransgender individualsSample of transgender individualsChronic health conditionsTransgender populationTransgender samplesSex-specific conditionsOdds of post-traumatic stress disorderDrug use disordersHealth conditionsHealth disparitiesGender categorizationGenderCensus regionPeopleUse disorderTransgenderInsuranceAlcohol use disorderPost-traumatic stress disorderCensusIndividualsAtherosclerotic cardiovascular disordersLogistic regression
2021
“I'm a transgender man… I have to quit smoking for treatment and surgery”: Describing the experience of a Latino transgender man during his attempt to quit smoking
Cartujano-Barrera F, Cox L, Catley D, Shah Z, Alpert A, Cupertino A. “I'm a transgender man… I have to quit smoking for treatment and surgery”: Describing the experience of a Latino transgender man during his attempt to quit smoking. Explore: The Journal Of Science & Healing 2021, 19: 131-135. PMID: 34823998, PMCID: PMC9110554, DOI: 10.1016/j.explore.2021.11.005.Peer-Reviewed Original ResearchConceptsTransgender menQuit smokingMessaging interventionMobile interventionsSmoking cessation randomized controlled trialTransgender peopleGender-affirming surgeryGender identitySmoking cessation interventionsLow social supportSelf-reported abstinenceSelf-reported cigarette useRandomized controlled trialsCessation interventionsAffirmation surgeryLatino smokersIntervention periodSocial supportCigarette useHigh satisfactionText messagesControlled trialsSmokingGenderInterventionHealth outcomes of sexual and gender minorities after cancer: a systematic review
Pratt-Chapman M, Alpert A, Castillo D. Health outcomes of sexual and gender minorities after cancer: a systematic review. Systematic Reviews 2021, 10: 183. PMID: 34154645, PMCID: PMC8218456, DOI: 10.1186/s13643-021-01707-4.Peer-Reviewed Original ResearchConceptsPatient-reported health outcomesHealth outcomesOutcomes related to cancerImpact of cancer diagnosisSGM peopleHistory of breastHistory of cancerResultsSixty-four studiesCross-sectional studyGender minoritiesCochrane Central Register of Controlled TrialsCentral Register of Controlled TrialsRegister of Controlled TrialsCancer survivorsBetween-group differencesWeb of ScienceSexual minority menCochrane Central RegisterConvenience sampleSGM populationsSystematic keyword searchMethodsIn MarchSecondary analysisStudy participantsCancer diagnosisRethinking sex-assigned-at-birth questions
Alpert A, Ruddick R, Manzano C. Rethinking sex-assigned-at-birth questions. The BMJ 2021, 373: n1261. PMID: 34031025, DOI: 10.1136/bmj.n1261.Peer-Reviewed Original ResearchConfidence
Alpert A, Moftakhar B. Confidence. Journal Of Clinical Oncology 2021, 39: 2410-2412. PMID: 33979204, DOI: 10.1200/jco.21.00012.Peer-Reviewed Original ResearchI’m not putting on that floral gown: Enforcement and resistance of gender expectations for transgender people with cancer
Alpert A, Gampa V, Lytle M, Manzano C, Ruddick R, Poteat T, Quinn G, Kamen C. I’m not putting on that floral gown: Enforcement and resistance of gender expectations for transgender people with cancer. Patient Education And Counseling 2021, 104: 2552-2558. PMID: 33745786, PMCID: PMC9320277, DOI: 10.1016/j.pec.2021.03.007.Peer-Reviewed Original ResearchConceptsOncology careGroup interviewsTransgender peopleInterpretive description approachAnalyzed verbatim transcriptsExperiences of transgender peopleCancer careAssess barriersCare accessVerbatim transcriptsCancer objectivesDecrease barriersPeer debriefingMember checkingPatient autonomyImpact transgender peopleGender expectationsCareOncology spaceTreating peopleDescriptive approachPhysiciansThemesCliniciansInterviewsIdentification of Transgender People With Cancer in Electronic Health Records: Recommendations Based on CancerLinQ Observations.
Alpert A, Komatsoulis G, Meersman S, Garrett-Mayer E, Bruinooge S, Miller R, Potter D, Koronkowski B, Stepanski E, Dizon D. Identification of Transgender People With Cancer in Electronic Health Records: Recommendations Based on CancerLinQ Observations. JCO Oncology Practice 2021, 17: e336-e342. PMID: 33705680, DOI: 10.1200/op.20.00634.Peer-Reviewed Original ResearchConceptsElectronic health recordsGender identity dataTransgender identityTransgender peopleHealth recordsNational concerted effortDatabase of clinical dataCancer prevalenceCancerLinQHealthcare environmentTransgender populationInclusion criteriaTransgenderFemale genderSystemic effortsOutcome dataMale genderCurrent data resourcesTotal populationCategory 2Criterion 2GenderUnited StatesIdentityPeople
2020
What Exactly Are We Measuring? Evaluating Sexual and Gender Minority Cultural Humility Training for Oncology Care Clinicians.
Alpert A, Kamen C, Schabath M, Hamel L, Seay J, Quinn G. What Exactly Are We Measuring? Evaluating Sexual and Gender Minority Cultural Humility Training for Oncology Care Clinicians. Journal Of Clinical Oncology 2020, 38: 2605-2609. PMID: 32552279, PMCID: PMC7402994, DOI: 10.1200/jco.19.03300.Peer-Reviewed Original Research