2024
Perspectives of Adolescents and Young Adults With Sickle Cell Disease and Clinicians on Improving Transition Readiness With a Video Game Intervention
Aronson P, Nolan S, Schaeffer P, Hieftje K, Ponce K, Calhoun C. Perspectives of Adolescents and Young Adults With Sickle Cell Disease and Clinicians on Improving Transition Readiness With a Video Game Intervention. Journal Of Pediatric Hematology/Oncology 2024, 46: e147-e155. PMID: 38237001, DOI: 10.1097/mph.0000000000002810.Peer-Reviewed Original ResearchConceptsVideo game interventionPediatric to adult careOptimize self-efficacyGame interventionPatient engagementSelf-efficacyAdult careIdentified 4 main themesMedical decisionsImprove transition readinessYoung adultsExperiences of cliniciansQuaternary-care hospitalSickle cell diseaseData saturationTransition readinessMultilevel determinantsSemistructured interviewsClinician experienceHome managementCareInductive analysisCell diseaseDecision-makingIntervention
2023
Perspectives of Adolescents and Young Adults with Sickle Cell Disease and Clinicians on Improving Transition Readiness and a Videogame Intervention
Aronson P, Nolan S, Schaeffer P, Hieftje K, Ponce K, Calhoun C. Perspectives of Adolescents and Young Adults with Sickle Cell Disease and Clinicians on Improving Transition Readiness and a Videogame Intervention. Blood 2023, 142: 5116. DOI: 10.1182/blood-2023-173310.Peer-Reviewed Original ResearchAdult careSickle cell diseaseTransition readinessPatient engagementClinician experienceVideogame interventionCell diseaseMedical decisionsYoung adultsDisease-specific knowledgeQuaternary care hospitalYoung SCD patientsSuccessful home managementHigh rateParents/caregiversPain crisisCare hospitalPatient factorsSuccessful disease managementHealthcare utilizationSCD patientsClinical manifestationsEmergency departmentProvider judgmentClinician's perspectiveHealth literacy correlates with abbreviated full‐scale IQ in adolescent and young adults with sickle cell disease
Bhatt N, Calhoun C, Longoria J, Nwosu C, Howell K, Varughese T, Kang G, Jacola L, Hankins J, King A. Health literacy correlates with abbreviated full‐scale IQ in adolescent and young adults with sickle cell disease. Pediatric Blood & Cancer 2023, 70: e30281. PMID: 36861391, PMCID: PMC10425156, DOI: 10.1002/pbc.30281.Peer-Reviewed Original ResearchConceptsSickle cell diseaseFull-scale intelligence quotientAdequate health literacyHealth literacyCell diseaseNeurocognitive deficitsInadequate health literacyLow health literacyCross-sectional studyDevelopment of interventionsChronic conditionsAdult careHigh school educationSign toolHealth outcomesYounger ageLogistic regressionAge 15Young adultsYoung adulthoodHealthcare decisionsAYAsIntelligence quotientWechsler Abbreviated ScaleDisease
2021
Transition for Adolescents and Young Adults With Sickle Cell Disease in a US Midwest Urban Center: A Multilevel Perspective on Barriers, Facilitators, and Future Directions
Calhoun C, Luo L, Baumann AA, Bauer A, Shen E, McKay V, Hooley C, James A, King AA. Transition for Adolescents and Young Adults With Sickle Cell Disease in a US Midwest Urban Center: A Multilevel Perspective on Barriers, Facilitators, and Future Directions. Journal Of Pediatric Hematology/Oncology 2021, 44: e872-e880. PMID: 35731941, PMCID: PMC9218344, DOI: 10.1097/mph.0000000000002322.Peer-Reviewed Original ResearchConceptsSickle cell diseaseAdult careCell diseaseSCD providersInherited red blood cell disorderIntervention characteristicsYoung adultsDomains of CFIRRed blood cell disordersEmergency department providersBlood cell disordersPain controlImplementation science frameworkLarge hospital systemHigh morbidityAdult clinicEmergency departmentSpecialized careCell disordersMultilevel barriersPatient experienceOuter settingInner settingHealth disparitiesConsolidated Framework
2019
Implementation of an educational intervention to optimize self‐management and transition readiness in young adults with sickle cell disease
Calhoun CL, Abel RA, Pham HA, Thompson S, King AA. Implementation of an educational intervention to optimize self‐management and transition readiness in young adults with sickle cell disease. Pediatric Blood & Cancer 2019, 66: e27722. PMID: 30907500, PMCID: PMC6529244, DOI: 10.1002/pbc.27722.Peer-Reviewed Original ResearchConceptsSickle cell diseaseTransition readinessEducational handoutAdult careCell diseaseYoung adultsSingle-center studyPeriod of morbiditySelf-management skillsType of interventionPediatric settingStudy coordinatorsHealthcare skillsEducational interventionMultidisciplinary approachBaselineCarePatientsInterventionPostinterventionAreas of deficitDiseaseAdolescentsRegression modelsMost improvement
2018
Understanding Health Knowledge Gaps to Optimize Transitions of Care for Young Adults with Sickle Cell Disease
Calhoun C, Luo L, Baumann A, James A, King A. Understanding Health Knowledge Gaps to Optimize Transitions of Care for Young Adults with Sickle Cell Disease. Blood 2018, 132: 2274. DOI: 10.1182/blood-2018-99-113150.Peer-Reviewed Original ResearchSickle cell diseaseDisease-specific knowledgePatient-provider communicationAdult careYoung adultsOccupational settingsDisease complicationsCell diseaseHealth knowledgeEmergency department providersTransitions of careHealth knowledge gapsQuality of lifeUse of diseaseAfrican AmericansCommon genetic conditionYoung adult periodProphylactic penicillinPneumococcal vaccinationLarge hospital systemHealthcare utilizationSCD patientsHigh morbidityED providersTreatment options
2017
Current Healthcare Utilization Patterns and Most Common Reasons for Admission Amongst Patients with Sickle Cell Disease
Calhoun C, Keller M, Olsen M, King A. Current Healthcare Utilization Patterns and Most Common Reasons for Admission Amongst Patients with Sickle Cell Disease. Blood 2017, 130: 866. DOI: 10.1182/blood.v130.suppl_1.866.866.Peer-Reviewed Original ResearchSickle cell diseaseVaso-occlusive crisisSCD patientsState Inpatient DatabasesIndex hospitalizationRespiratory infectionsHealthcare utilizationSCD populationAge groupsAdult careCell diseaseCommon reasonHuman Research Protection OfficeICD-9-CM diagnosis codesICD-9-CM diagnosisUtilization Project State Inpatient DatabasesYoung adult age groupPrimary insurance typeVaso-occlusive episodesAnnual healthcare costsChronic lung diseaseHealthcare utilization patternsHospital resource useYears age groupHigher mortality risk
2016
Implementation of an Educational Intervention to Optimize Self-Management and Transition Readiness in Adolescents with Sickle Cell Disease
Calhoun C, Abel R, Pham H, Thompson S, King A. Implementation of an Educational Intervention to Optimize Self-Management and Transition Readiness in Adolescents with Sickle Cell Disease. Blood 2016, 128: 3536. DOI: 10.1182/blood.v128.22.3536.3536.Peer-Reviewed Original ResearchSickle cell diseaseEducational handoutAdult careCell diseaseTransition readinessSilent cerebral infarctsEnd-organ damageSubsequent clinic visitsEducational interventionHistory of strokeMajority of patientsPediatric hematology clinicYear oldsFormal transition programAge group 13Institutional review boardUniversity Institutional Review BoardCerebral infarctsChart abstractionClinic visitsStandard careIndependent livingHematology clinicMedical managementOrgan damage