2023
Perspectives of Adolescents and Young Adults with Sickle Cell Disease and Clinicians on Improving Transition Readiness and a Videogame Intervention
Aronson P, Nolan S, Schaeffer P, Hieftje K, Ponce K, Calhoun C. Perspectives of Adolescents and Young Adults with Sickle Cell Disease and Clinicians on Improving Transition Readiness and a Videogame Intervention. Blood 2023, 142: 5116. DOI: 10.1182/blood-2023-173310.Peer-Reviewed Original ResearchAdult careSickle cell diseaseTransition readinessPatient engagementClinician experienceVideogame interventionCell diseaseMedical decisionsYoung adultsDisease-specific knowledgeQuaternary care hospitalYoung SCD patientsSuccessful home managementHigh rateParents/caregiversPain crisisCare hospitalPatient factorsSuccessful disease managementHealthcare utilizationSCD patientsClinical manifestationsEmergency departmentProvider judgmentClinician's perspective
2018
Understanding Health Knowledge Gaps to Optimize Transitions of Care for Young Adults with Sickle Cell Disease
Calhoun C, Luo L, Baumann A, James A, King A. Understanding Health Knowledge Gaps to Optimize Transitions of Care for Young Adults with Sickle Cell Disease. Blood 2018, 132: 2274. DOI: 10.1182/blood-2018-99-113150.Peer-Reviewed Original ResearchSickle cell diseaseDisease-specific knowledgePatient-provider communicationAdult careYoung adultsOccupational settingsDisease complicationsCell diseaseHealth knowledgeEmergency department providersTransitions of careHealth knowledge gapsQuality of lifeUse of diseaseAfrican AmericansCommon genetic conditionYoung adult periodProphylactic penicillinPneumococcal vaccinationLarge hospital systemHealthcare utilizationSCD patientsHigh morbidityED providersTreatment options