2021
Transition for Adolescents and Young Adults With Sickle Cell Disease in a US Midwest Urban Center: A Multilevel Perspective on Barriers, Facilitators, and Future Directions
Calhoun C, Luo L, Baumann AA, Bauer A, Shen E, McKay V, Hooley C, James A, King AA. Transition for Adolescents and Young Adults With Sickle Cell Disease in a US Midwest Urban Center: A Multilevel Perspective on Barriers, Facilitators, and Future Directions. Journal Of Pediatric Hematology/Oncology 2021, 44: e872-e880. PMID: 35731941, PMCID: PMC9218344, DOI: 10.1097/mph.0000000000002322.Peer-Reviewed Original ResearchConceptsSickle cell diseaseAdult careCell diseaseSCD providersInherited red blood cell disorderIntervention characteristicsYoung adultsDomains of CFIRRed blood cell disordersEmergency department providersBlood cell disordersPain controlImplementation science frameworkLarge hospital systemHigh morbidityAdult clinicEmergency departmentSpecialized careCell disordersMultilevel barriersPatient experienceOuter settingInner settingHealth disparitiesConsolidated Framework
2018
Understanding Health Knowledge Gaps to Optimize Transitions of Care for Young Adults with Sickle Cell Disease
Calhoun C, Luo L, Baumann A, James A, King A. Understanding Health Knowledge Gaps to Optimize Transitions of Care for Young Adults with Sickle Cell Disease. Blood 2018, 132: 2274. DOI: 10.1182/blood-2018-99-113150.Peer-Reviewed Original ResearchSickle cell diseaseDisease-specific knowledgePatient-provider communicationAdult careYoung adultsOccupational settingsDisease complicationsCell diseaseHealth knowledgeEmergency department providersTransitions of careHealth knowledge gapsQuality of lifeUse of diseaseAfrican AmericansCommon genetic conditionYoung adult periodProphylactic penicillinPneumococcal vaccinationLarge hospital systemHealthcare utilizationSCD patientsHigh morbidityED providersTreatment options