Perceptions of US Adolescents and Adults With Sickle Cell Disease on Their Quality of Care
Kanter J, Gibson R, Lawrence RH, Smeltzer MP, Pugh NL, Glassberg J, Masese RV, King AA, Calhoun C, Hankins JS, Treadwell M. Perceptions of US Adolescents and Adults With Sickle Cell Disease on Their Quality of Care. JAMA Network Open 2020, 3: e206016. PMID: 32469413, PMCID: PMC7260622, DOI: 10.1001/jamanetworkopen.2020.6016.Peer-Reviewed Original ResearchConceptsSickle cell diseaseSickle Cell Disease Implementation ConsortiumCell diseaseInherited red blood cell disorderResponse rateQuality careAdequate quality carePerception of outpatientsUsual care cliniciansUsual care physiciansEmergency department careAcute care settingRed blood cell disordersHealth careMedical care experienceWorse health outcomesQuality of careMultiple health disparitiesBlood cell disordersQuality health careED satisfactionAcute painED visitsSevere painYounger patients