2022
Integrating Palliative Care Into Self-management of Breast Cancer
Schulman-Green D, Linsky S, Jeon S, Holland ML, Kapo J, Blatt L, Adams C, Chagpar AB. Integrating Palliative Care Into Self-management of Breast Cancer. Cancer Nursing 2022, 46: e169-e180. PMID: 35353749, PMCID: PMC9519806, DOI: 10.1097/ncc.0000000000001078.Peer-Reviewed Original ResearchConceptsBreast cancer patientsPalliative careCancer careRace/ethnicityCancer patientsChronic Disease Self-Efficacy ScaleStage III/IV cancerSingle-blind pilotSymptom management educationSelf-management planFeasibility/acceptabilityAcademic cancer centerMedical Communication Competence ScaleSelf-management outcomesLate-stage cancerEthnic minority patientsEffect sizeClinical characteristicsCancer CenterHospital AnxietyMishel UncertaintyCancer stageIllness ScaleBreast cancerDepression ScaleImproving Breast Cancer Family Caregivers’ Palliative Care Literacy: A Pilot Randomized Trial
Schulman-Green D, Linsky S, Blatt L, Jeuland J, Kapo J, Jeon S. Improving Breast Cancer Family Caregivers’ Palliative Care Literacy: A Pilot Randomized Trial. Journal Of Family Nursing 2022, 29: 99-114. PMID: 35670155, DOI: 10.1177/10748407221099541.Peer-Reviewed Original ResearchConceptsCancer family caregiversCaregiver burdenFamily caregiversPilot Randomized TrialRandomized trialsMean agePreliminary efficacyCancer carePatient goalsIntervention participantsCare conversationsCare communicationCaregiver activitiesFurther studiesTrialsCaregiversBurdenTraining programParticipantsPatientsEthnic minoritiesIllnessFamily managementActivityLack of goals
2021
Expert Panel Consensus on Management of Advanced Cancer–Related Pain in Individuals With Opioid Use Disorder
Merlin JS, Khodyakov D, Arnold R, Bulls HW, Dao E, Kapo J, King C, Meier D, Paice J, Ritchie C, Liebschutz JM. Expert Panel Consensus on Management of Advanced Cancer–Related Pain in Individuals With Opioid Use Disorder. JAMA Network Open 2021, 4: e2139968. PMID: 34962565, DOI: 10.1001/jamanetworkopen.2021.39968.Peer-Reviewed Original ResearchConceptsOpioid use disorderFull agonist opioidsAdvanced cancerUncertain appropriatenessCancer painPalliative careUse disordersCancer pain managementAppropriateness of managementExpert panel consensusConsensus-based guidanceImportant comorbidityOpioid medicationsPain managementMethadone clinicsPainPatientsPanel consensusPrognosisCancerMethadoneDelphi processExpert panelMonthsOpioids
2020
Mobilizing an institutional supportive response for healthcare workers and other staff in the context of COVID-19: The Yale experience
Krystal JH, Alvarado J, Ball SA, Fortunati FG, Hu M, Ivy ME, Kapo J, Olson KD, Rohrbaugh RM, Sinha R, Tebes JK, Vender RJ, Yonkers KA, Mayes LC. Mobilizing an institutional supportive response for healthcare workers and other staff in the context of COVID-19: The Yale experience. General Hospital Psychiatry 2020, 68: 12-18. PMID: 33254081, PMCID: PMC7680059, DOI: 10.1016/j.genhosppsych.2020.11.005.Peer-Reviewed Original Research
2018
Managing Chronic Pain in Cancer Survivors Prescribed Long-Term Opioid Therapy: A National Survey of Ambulatory Palliative Care Providers
Merlin JS, Patel K, Thompson N, Kapo J, Keefe F, Liebschutz J, Paice J, Somers T, Starrels J, Childers J, Schenker Y, Ritchie CS. Managing Chronic Pain in Cancer Survivors Prescribed Long-Term Opioid Therapy: A National Survey of Ambulatory Palliative Care Providers. Journal Of Pain And Symptom Management 2018, 57: 20-27. PMID: 30342243, DOI: 10.1016/j.jpainsymman.2018.10.493.Peer-Reviewed Original ResearchConceptsLong-term opioid therapyOpioid misuse behaviorsChronic painPalliative care providersCancer survivorsOpioid therapyCare providersAmbulatory palliative care settingAddiction treatmentOpioid treatment agreementsPalliative care settingCare providers' experiencesUrine drug testingMisuse behaviorsPalliative care organizationsPharmacologic treatmentTreatment agreementsCare settingsNurse practitionersPainProvider experienceSurvivorsDrug testingCare organizationsTherapy
2017
Chaplains Working in Palliative Care: Who They Are and What They Do
Jeuland J, Fitchett G, Schulman-Green D, Kapo J. Chaplains Working in Palliative Care: Who They Are and What They Do. Journal Of Palliative Medicine 2017, 20: 502-508. PMID: 28146647, DOI: 10.1089/jpm.2016.0308.Peer-Reviewed Original ResearchConceptsPC teamSpiritual care needsPC patientsPatients' spiritual care needsPalliative care programsTime of deathPalliative careCare conversationsMAIN OUTCOMECare needsSpiritual distressCare programNational online surveyPatientsCritical rolePractice informationFirst descriptionUnited StatesOnline surveyExistential issuesChaplainsAverage numberHalfTeam
2008
Identifying the Factors That Facilitate or Hinder Advance Planning by Persons With Dementia
Hirschman KB, Kapo JM, Karlawish JH. Identifying the Factors That Facilitate or Hinder Advance Planning by Persons With Dementia. Alzheimer Disease & Associated Disorders 2008, 22: 293-298. PMID: 18580595, PMCID: PMC2666935, DOI: 10.1097/wad.0b013e318169d669.Peer-Reviewed Original Research
2006
Why Doesn't a Family Member of a Person With Advanced Dementia Use a Substituted Judgment When Making a Decision for That Person?
Hirschman KB, Kapo JM, Karlawish JH. Why Doesn't a Family Member of a Person With Advanced Dementia Use a Substituted Judgment When Making a Decision for That Person? American Journal Of Geriatric Psychiatry 2006, 14: 659-667. PMID: 16861370, DOI: 10.1097/01.jgp.0000203179.94036.69.Peer-Reviewed Original ResearchConceptsAdvanced dementiaHealthcare preferencesFamily membersLong-term care facilitiesMedical decisionsSubstituted judgmentAlzheimer's Disease CenterEarly-stage dementiaDisease CenterCare facilitiesPatient denialSubstituted judgment standardDementiaHealthcare professionalsPatientsSemistructured interviewsFamily consensusPersonsBest interestsUnrealistic expectations
2005
"Lost to Follow-up": Ethnic Disparities in Continuity of Hospice Care at the End of Life
Kapo J, Macmoran H, Casarett D. "Lost to Follow-up": Ethnic Disparities in Continuity of Hospice Care at the End of Life. Journal Of Palliative Medicine 2005, 8: 603-608. PMID: 15992202, DOI: 10.1089/jpm.2005.8.603.Peer-Reviewed Original ResearchConceptsAfrican American patientsEnd of lifeFirst admissionHospice utilizationAmerican patientsEthnic disparitiesMultivariable logistic regression modelAfrican AmericansRetrospective cohort studyIntensive nursing careAfrican American ethnicityElectronic medical recordsLower ratesLogistic regression modelsCohort studyPatient characteristicsSymptom managementHospice dischargeMedical recordsNursing careHospice careLife carePatientsDecreased likelihoodHospice programsTiming of Hospice Referral and Families' Perceptions of Services: Are Earlier Hospice Referrals Better?
Rickerson E, Harrold J, Kapo J, Carroll JT, Casarett D. Timing of Hospice Referral and Families' Perceptions of Services: Are Earlier Hospice Referrals Better? Journal Of The American Geriatrics Society 2005, 53: 819-823. PMID: 15877557, DOI: 10.1111/j.1532-5415.2005.53259.x.Peer-Reviewed Original ResearchConceptsLength of stayFamilies of patientsHospice referralHospice servicesEarlier hospice referralFamily perceptionsEnd of lifeHospice admissionHospice enrollmentPatient deathStayFamily reportHospicePatientsLess benefitLonger lengthReferralDeathShorter lengthHelpfulness ratingsMost familiesReportGreat benefitFuture effortsAdmission