2020
Utilization, financial outcomes and stakeholder perspectives of a re-organized adult sickle cell program
Rousseau R, Weisberg DF, Gorero J, Parwani V, Bozzo J, Kenyon K, Smith C, Cole J, Curtis S, Forray A, Roberts JD. Utilization, financial outcomes and stakeholder perspectives of a re-organized adult sickle cell program. PLOS ONE 2020, 15: e0236360. PMID: 32706825, PMCID: PMC7380627, DOI: 10.1371/journal.pone.0236360.Peer-Reviewed Original ResearchConceptsSickle cell diseaseCell diseaseYale-New Haven HospitalAcute care servicesCare of adultsPoor socio-economic statusPersonalized care planSickle Cell ProgramNew Haven HospitalSingle nursing unitParenteral opioidsPain controlClinic visitsMost patientsPain managementChronic painOutpatient visitsPrimary complaintEmergency departmentPrimary careInpatient daysCare plansCare servicesSocio-economic statusNursing units
2005
Health related quality of life in sickle cell patients: The PiSCES project
McClish DK, Penberthy LT, Bovbjerg VE, Roberts JD, Aisiku IP, Levenson JL, Roseff SD, Smith WR. Health related quality of life in sickle cell patients: The PiSCES project. Health And Quality Of Life Outcomes 2005, 3: 50. PMID: 16129027, PMCID: PMC1253526, DOI: 10.1186/1477-7525-3-50.Peer-Reviewed Original ResearchConceptsQuality of lifeEmotional role functionBodily painMental healthRole functionPhysical functionGeneral healthCell diseaseSickle Cell Epidemiology StudySickle cell disease patientsBackgroundSickle cell diseaseHealth-related qualityMedical Outcomes StudySF-36 subscalesGeneral health subscaleSickle cell patientsChronic disease cohortsSickle cell diseaseCystic fibrosis patientsPiSCES projectAsthma patientsLower HRQoLPain levelsDialysis patientsHemodialysis patients