2017
Determining the longitudinal validity and meaningful differences in HRQL of the PedsQL™ Sickle Cell Disease Module
Panepinto J, Paul Scott J, Badaki-Makun O, Darbari D, Chumpitazi C, Airewele G, Ellison A, Smith-Whitley K, Mahajan P, Sarnaik S, Charles Casper T, Cook L, Leonard J, Hulbert M, Powell E, Liem R, Hickey R, Krishnamurti L, Hillery C, Brousseau D, for the Pediatric Emergency Care Applied Research Network (PECARN). Determining the longitudinal validity and meaningful differences in HRQL of the PedsQL™ Sickle Cell Disease Module. Health And Quality Of Life Outcomes 2017, 15: 124. PMID: 28606098, PMCID: PMC5468970, DOI: 10.1186/s12955-017-0700-2.Peer-Reviewed Original ResearchConceptsSickle Cell Disease ModuleDisease-specific HRQL instrumentsHealth-related qualityPatient-centered outcomesProspective trial designSickle cell diseaseSpecific HRQL instrumentsHRQL assessmentHRQL instrumentsLongitudinal validityAncillary studiesCell diseaseTrial designHealth statusDisease modulesTime pointsPedsQLMeaningful changeChildrenHRQLPatientsHospitalDisease
2014
Impact of individualized pain plan on the emergency management of children with sickle cell disease
Krishnamurti L, Smith‐Packard B, Gupta A, Campbell M, Gunawardena S, Saladino R. Impact of individualized pain plan on the emergency management of children with sickle cell disease. Pediatric Blood & Cancer 2014, 61: 1747-1753. PMID: 24962217, DOI: 10.1002/pbc.25024.Peer-Reviewed Original ResearchConceptsVaso-occlusive crisisSickle cell diseaseIndividualized pain plansPain management planEmergency departmentPain managementPain planPatient satisfactionCell diseaseRate of hospitalizationWong-Baker scaleRate of admissionHealth Information DatabaseBaker scalePain scoresED visitsReadmission ratesChildren's HospitalED managementAvoidable hospitalizationsPatient responsePatientsComparable hospitalsHospitalHigh levels
2006
Structured telephone‐based outreach using nonmedical personnel can improve adherence to comprehensive care in families of children with sickle cell disease
Patik M, Phillips L, Kladny B, Captain A, Gettig E, Krishnamurti L. Structured telephone‐based outreach using nonmedical personnel can improve adherence to comprehensive care in families of children with sickle cell disease. American Journal Of Hematology 2006, 81: 462-464. PMID: 16680738, DOI: 10.1002/ajh.20605.Peer-Reviewed Original ResearchConceptsSickle cell diseaseComprehensive careCell diseaseNonmedical personnelHealth care resource utilizationNumber of patientsComprehensive medical careComprehensive Care ClinicHealth-related behaviorsEligible patientsCare clinicsTranscranial DopplerChildren's HospitalCare measuresFamilies of childrenLast contactPatientsMedical careSemistructured scriptCareAdherenceHospitalDiseaseMonthsMonthly intervals