2017
Experiences and Decision Making in Hematopoietic Stem Cell Transplant in Sickle Cell Disease: Patients' and Caregivers' Perspectives
Khemani K, Ross D, Sinha C, Haight A, Bakshi N, Krishnamurti L. Experiences and Decision Making in Hematopoietic Stem Cell Transplant in Sickle Cell Disease: Patients' and Caregivers' Perspectives. Transplantation And Cellular Therapy 2017, 24: 1041-1048. PMID: 29196076, DOI: 10.1016/j.bbmt.2017.11.018.Peer-Reviewed Original ResearchConceptsHematopoietic stem cell transplantSickle cell diseaseStem cell transplantPatient-caregiver dyadsCell transplantCell diseaseSuccessful hematopoietic stem cell transplantAdult long-term survivorsTransplant-related morbidityDisease-related complicationsLong-term survivorsQuality of lifeSemistructured interview guideFocus group sessionsCurative intentHSCT decisionChildhood morbidityCaregivers' knowledgeHSCT experiencePremature mortalityDaily livingDecisional regretPatientsCaregiver perspectivesChild healthcare
2006
Structured telephone‐based outreach using nonmedical personnel can improve adherence to comprehensive care in families of children with sickle cell disease
Patik M, Phillips L, Kladny B, Captain A, Gettig E, Krishnamurti L. Structured telephone‐based outreach using nonmedical personnel can improve adherence to comprehensive care in families of children with sickle cell disease. American Journal Of Hematology 2006, 81: 462-464. PMID: 16680738, DOI: 10.1002/ajh.20605.Peer-Reviewed Original ResearchConceptsSickle cell diseaseComprehensive careCell diseaseNonmedical personnelHealth care resource utilizationNumber of patientsComprehensive medical careComprehensive Care ClinicHealth-related behaviorsEligible patientsCare clinicsTranscranial DopplerChildren's HospitalCare measuresFamilies of childrenLast contactPatientsMedical careSemistructured scriptCareAdherenceHospitalDiseaseMonthsMonthly intervals