2024
Quality of Care in the Last Two Years of Life for Children With Complex Chronic Conditions
Bogetz J, Strub B, Bradford M, McGalliard J, Shipman K, Jeyte A, Patneaude A, Johnston E, Ananth P, Thienprayoon R, Rosenberg A. Quality of Care in the Last Two Years of Life for Children With Complex Chronic Conditions. Journal Of Pain And Symptom Management 2024, 68: 488-498.e1. PMID: 39097243, DOI: 10.1016/j.jpainsymman.2024.07.034.Peer-Reviewed Original ResearchComplex chronic conditionsEnd-of-life quality measuresEnd-of-lifeChronic conditionsHealthcare servicesQuality EOL careQuality measuresQuality of careICD-10 diagnosis codesEvaluate demographic differencesU.S. children's hospitalsYears of lifeEOL careDied in-hospitalInterprofessional supportSymptom managementHealthcare utilizationHospital performanceMedication intensityNon-HispanicDiagnosis codesDescriptive statisticsCardiopulmonary resuscitationChildren's hospitalPublic insurance
2022
Development of Primary Palliative Care End-of-Life Quality Measures: A Modified Delphi Process.
Bogetz J, Johnston E, Thienprayoon R, Patneaude A, Ananth P, Rosenberg A. Development of Primary Palliative Care End-of-Life Quality Measures: A Modified Delphi Process. Pediatrics 2022, 150 PMID: 36437228, DOI: 10.1542/peds.2022-058241.Peer-Reviewed Original ResearchConceptsComplex chronic conditionsEOL quality measuresPediatric palliative careEnd of lifeElectronic health recordsHealth care utilizationMultidisciplinary expert panelHigh-quality pediatric palliative careManual chart reviewQuality improvement initiativesModified Delphi processChart reviewCare utilizationSymptom managementPalliative careChronic conditionsIllness trajectoryPediatric measuresLife quality measuresDelphi processHealth recordsExpert panelImprovement initiativesQuality measuresInterprofessional services
2015
Hospital Use in the Last Year of Life for Children With Life-Threatening Complex Chronic Conditions
Ananth P, Melvin P, Feudtner C, Wolfe J, Berry JG. Hospital Use in the Last Year of Life for Children With Life-Threatening Complex Chronic Conditions. Pediatrics 2015, 136: 938-946. PMID: 26438707, PMCID: PMC4621793, DOI: 10.1542/peds.2015-0260.Peer-Reviewed Original ResearchConceptsComplex chronic conditionsHospital useChronic conditionsPediatric Health Information System databaseHealth Information System databaseClinical Modification codesUS children's hospitalsHospital resource useCostly health careHealth care experiencesHematologic/Terminal admissionEnd of lifeUnderwent surgeryHospital daysHospital admissionImmunologic conditionsChildren's HospitalHospital costsInformation System databaseRetrospective analysisInternational ClassificationCare experiencesAdmissionHealth care