2024
Quality of Care in the Last Two Years of Life for Children With Complex Chronic Conditions
Bogetz J, Strub B, Bradford M, McGalliard J, Shipman K, Jeyte A, Patneaude A, Johnston E, Ananth P, Thienprayoon R, Rosenberg A. Quality of Care in the Last Two Years of Life for Children With Complex Chronic Conditions. Journal Of Pain And Symptom Management 2024, 68: 488-498.e1. PMID: 39097243, DOI: 10.1016/j.jpainsymman.2024.07.034.Peer-Reviewed Original ResearchComplex chronic conditionsEnd-of-life quality measuresEnd-of-lifeChronic conditionsHealthcare servicesQuality EOL careQuality measuresQuality of careICD-10 diagnosis codesEvaluate demographic differencesU.S. children's hospitalsYears of lifeEOL careDied in-hospitalInterprofessional supportSymptom managementHealthcare utilizationHospital performanceMedication intensityNon-HispanicDiagnosis codesDescriptive statisticsCardiopulmonary resuscitationChildren's hospitalPublic insuranceDefining the Denominator for Measuring Quality of End-of-Life Care in Children with Cancer: Results of a Nominal Group Technique
Johnston E, Tefera R, Ananth P, Martinez I, Porter A, Snaman J, Thienprayoon R, Asch S, Bhatia S, O'Beirne R. Defining the Denominator for Measuring Quality of End-of-Life Care in Children with Cancer: Results of a Nominal Group Technique. The Journal Of Pediatrics 2024, 271: 114038. PMID: 38554745, DOI: 10.1016/j.jpeds.2024.114038.Peer-Reviewed Original ResearchEnd-of-lifePoor-prognosis cancerEnd-of-life quality measuresQuality of EOL careQuality measuresPediatric oncologyPediatric palliative carePediatric quality measuresPrognosis cancersNon-Hispanic whitesNominal groupsSpecific treatment scenarioNominal group techniqueEOL carePalliative careSeventy-nine percentBereaved parentsMeasure qualityClinical programsEnhance qualityGroup techniqueGroup of childrenCareParticipantsClinician-scientists
2023
Defining the denominator for measuring quality of end-of-life care in children with cancer: Results of a nominal group technique.
Johnston E, Tefera R, Ananth P, Martinez I, Porter A, Snaman J, Thienprayoon R, Asch S, Bhatia S, O'Beirne R. Defining the denominator for measuring quality of end-of-life care in children with cancer: Results of a nominal group technique. JCO Oncology Practice 2023, 19: 227-227. DOI: 10.1200/op.2023.19.11_suppl.227.Peer-Reviewed Original ResearchEOL quality measuresPoor-prognosis cancerQuality of EOLSpecific treatment scenarioNominal group techniqueHigh-quality EOL carePediatric palliative carePediatric critical careQuality of endNon-Hispanic whitesNational Quality ForumClinical program developmentAdvanced diseasePalliative carePediatric oncologyEOL careCritical careLife careStage IIIHospice cliniciansCertain symptomsCancerQuality ForumLife quality measuresTreatment scenarios