2023
Defining the denominator for measuring quality of end-of-life care in children with cancer: Results of a nominal group technique.
Johnston E, Tefera R, Ananth P, Martinez I, Porter A, Snaman J, Thienprayoon R, Asch S, Bhatia S, O'Beirne R. Defining the denominator for measuring quality of end-of-life care in children with cancer: Results of a nominal group technique. JCO Oncology Practice 2023, 19: 227-227. DOI: 10.1200/op.2023.19.11_suppl.227.Peer-Reviewed Original ResearchEOL quality measuresPoor-prognosis cancerQuality of EOLSpecific treatment scenarioNominal group techniqueHigh-quality EOL carePediatric palliative carePediatric critical careQuality of endNon-Hispanic whitesNational Quality ForumClinical program developmentAdvanced diseasePalliative carePediatric oncologyEOL careCritical careLife careStage IIIHospice cliniciansCertain symptomsCancerQuality ForumLife quality measuresTreatment scenarios
2021
Refining Patient-Centered Measures of End-of-Life Care Quality for Children With Cancer
Ananth P, Mun S, Reffat N, Kang SJ, Pitafi S, Ma X, Gross CP, Wolfe J. Refining Patient-Centered Measures of End-of-Life Care Quality for Children With Cancer. JCO Oncology Practice 2021, 18: e372-e382. PMID: 34613797, PMCID: PMC8932486, DOI: 10.1200/op.21.00447.Peer-Reviewed Original ResearchConceptsMedian importance scoresPalliative care consultationHealth care usePatient-reported outcomesCross-sectional electronic surveyLife care qualityPatient-centered measuresHealth care teamHealth care professionalsHealth care resourcesCandidate quality measuresCancer stakeholdersSymptom screeningCare consultationsCare useCare teamLife careCare professionalsPatient needsCare resourcesFamily stakeholdersCare qualityMedian scoreQuality measuresElectronic surveySociodemographic and hospital‐based predictors of intense end‐of‐life care among children, adolescents, and young adults with hematologic malignancies
Mun S, Wang R, Ma X, Ananth P. Sociodemographic and hospital‐based predictors of intense end‐of‐life care among children, adolescents, and young adults with hematologic malignancies. Cancer 2021, 127: 3817-3824. PMID: 34185881, PMCID: PMC8478813, DOI: 10.1002/cncr.33764.Peer-Reviewed Original ResearchConceptsHematologic malignanciesYoung adultsLife careMultivariable logistic regression modelCancer-directed treatmentPremier Healthcare DatabaseRetrospective cohort studyEmergency department visitsIntensive care unitHigh-intensity endDays of lifeMajority of childrenLogistic regression modelsIntravenous chemotherapyTracheostomy placementCohort studyDepartment visitsCare unitMechanical ventilationHospital characteristicsMultivariable modelCardiopulmonary resuscitationType of insuranceHealthcare databasesMalignancyA Stakeholder-Driven Qualitative Study to Define High Quality End-of-Life Care for Children With Cancer
Ananth P, Mun S, Reffat N, Li R, Sedghi T, Avery M, Snaman J, Gross CP, Ma X, Wolfe J. A Stakeholder-Driven Qualitative Study to Define High Quality End-of-Life Care for Children With Cancer. Journal Of Pain And Symptom Management 2021, 62: 492-502. PMID: 33556497, PMCID: PMC8339188, DOI: 10.1016/j.jpainsymman.2021.01.134.Peer-Reviewed Original ResearchConceptsHigh-quality endQuality EOLCAdvanced cancerSymptom managementLife careQuality endLocation of deathMulticenter qualitative studyAvoidance of hospitalizationPerson-centered measuresCancer stakeholdersEnd of lifeSupportive careMechanical ventilationParents of childrenEmergency departmentInterdisciplinary careInterdisciplinary healthcare professionalsCardiopulmonary resuscitationHospice careQualitative studyCancerHealthcare professionalsFamily preferencesYoung adults
2017
Influence of early phase clinical trial enrollment on patterns of end‐of‐life care for children with advanced cancer
Ananth P, Monsereenusorn C, Ma C, Al‐Sayegh H, Wolfe J, Rodriguez‐Galindo C. Influence of early phase clinical trial enrollment on patterns of end‐of‐life care for children with advanced cancer. Pediatric Blood & Cancer 2017, 65 PMID: 28771913, DOI: 10.1002/pbc.26748.Peer-Reviewed Original ResearchConceptsEarly phase clinical trialsTrial enrollmentAdvanced cancerHealthcare utilizationLife careRetrospective cohort studyPediatric oncology patientsClinical trial enrollmentPhase clinical trialsPatterns of endNeP patientsBaseline characteristicsCohort studyOncology patientsEP patientsPPC consultationClinical trialsCare receiptPatientsCancerEnrollmentCareFuture studiesChildrenEOLC
2016
Influence of early-phase clinical trial enrollment on patterns of end-of-life care for children with advanced cancer.
Ananth P, Monsereenusorn C, Ma C, Al-Sayegh H, Wolfe J, Rodriguez-Galindo C. Influence of early-phase clinical trial enrollment on patterns of end-of-life care for children with advanced cancer. Journal Of Clinical Oncology 2016, 34: 151-151. DOI: 10.1200/jco.2016.34.26_suppl.151.Peer-Reviewed Original ResearchEarly phase clinical trialsClinical trial enrollmentTrial enrollmentNeP patientsPhase clinical trialsClinic visitsAdvanced cancerPPC consultationACP discussionsHospital admissionEP patientsClinical trialsLife carePaediatric palliative care consultationsRetrospective cohort studyAdvance care planning discussionsPalliative care consultationAttempt-resuscitation ordersFrequent clinic visitsPediatric oncology patientsHospital resource useLarge cancer centerMonths of lifeDate of deathFisher's exact test