2022
End‐of‐life care quality for children with cancer who receive palliative care
Ananth P, Lindsay M, Nye R, Mun S, Feudtner C, Wolfe J. End‐of‐life care quality for children with cancer who receive palliative care. Pediatric Blood & Cancer 2022, 69: e29841. PMID: 35686746, PMCID: PMC10498672, DOI: 10.1002/pbc.29841.Peer-Reviewed Original ResearchConceptsIntensive care unit admissionCare unit admissionLife care qualityDistressing symptomsCancer decedentsEnd of lifeUnit admissionMechanical ventilationCare qualityPalliative Care DatabaseDays of lifeLower household incomeAnnual household incomeHospice enrollmentHospital admissionMultivariable analysisPatient factorsUnivariable analysisPalliative careCare databaseHospice servicesLower oddsResearch DatabaseCancer typesHospital services
2021
Refining Patient-Centered Measures of End-of-Life Care Quality for Children With Cancer
Ananth P, Mun S, Reffat N, Kang SJ, Pitafi S, Ma X, Gross CP, Wolfe J. Refining Patient-Centered Measures of End-of-Life Care Quality for Children With Cancer. JCO Oncology Practice 2021, 18: e372-e382. PMID: 34613797, PMCID: PMC8932486, DOI: 10.1200/op.21.00447.Peer-Reviewed Original ResearchConceptsMedian importance scoresPalliative care consultationHealth care usePatient-reported outcomesCross-sectional electronic surveyLife care qualityPatient-centered measuresHealth care teamHealth care professionalsHealth care resourcesCandidate quality measuresCancer stakeholdersSymptom screeningCare consultationsCare useCare teamLife careCare professionalsPatient needsCare resourcesFamily stakeholdersCare qualityMedian scoreQuality measuresElectronic survey