2024
Defining the Denominator for Measuring Quality of End-of-Life Care in Children with Cancer: Results of a Nominal Group Technique
Johnston E, Tefera R, Ananth P, Martinez I, Porter A, Snaman J, Thienprayoon R, Asch S, Bhatia S, O'Beirne R. Defining the Denominator for Measuring Quality of End-of-Life Care in Children with Cancer: Results of a Nominal Group Technique. The Journal Of Pediatrics 2024, 271: 114038. PMID: 38554745, DOI: 10.1016/j.jpeds.2024.114038.Peer-Reviewed Original ResearchEnd-of-lifePoor-prognosis cancerEnd-of-life quality measuresQuality of EOL careQuality measuresPediatric oncologyPediatric palliative carePediatric quality measuresPrognosis cancersNon-Hispanic whitesNominal groupsSpecific treatment scenarioNominal group techniqueEOL carePalliative careSeventy-nine percentBereaved parentsMeasure qualityClinical programsEnhance qualityGroup techniqueGroup of childrenCareParticipantsClinician-scientists
2023
Defining the denominator for measuring quality of end-of-life care in children with cancer: Results of a nominal group technique.
Johnston E, Tefera R, Ananth P, Martinez I, Porter A, Snaman J, Thienprayoon R, Asch S, Bhatia S, O'Beirne R. Defining the denominator for measuring quality of end-of-life care in children with cancer: Results of a nominal group technique. JCO Oncology Practice 2023, 19: 227-227. DOI: 10.1200/op.2023.19.11_suppl.227.Peer-Reviewed Original ResearchEOL quality measuresPoor-prognosis cancerQuality of EOLSpecific treatment scenarioNominal group techniqueHigh-quality EOL carePediatric palliative carePediatric critical careQuality of endNon-Hispanic whitesNational Quality ForumClinical program developmentAdvanced diseasePalliative carePediatric oncologyEOL careCritical careLife careStage IIIHospice cliniciansCertain symptomsCancerQuality ForumLife quality measuresTreatment scenariosMeasuring Pediatric Palliative Care Quality: Challenges and Opportunities
Boyden J, Bogetz J, Johnston E, Thienprayoon R, Williams C, McNeil M, Patneaude A, Widger K, Rosenberg A, Ananth P. Measuring Pediatric Palliative Care Quality: Challenges and Opportunities. Journal Of Pain And Symptom Management 2023, 65: e483-e495. PMID: 36736860, PMCID: PMC10106436, DOI: 10.1016/j.jpainsymman.2023.01.021.Peer-Reviewed Reviews, Practice Guidelines, Standards, and Consensus Statements
2022
Development of Primary Palliative Care End-of-Life Quality Measures: A Modified Delphi Process.
Bogetz J, Johnston E, Thienprayoon R, Patneaude A, Ananth P, Rosenberg A. Development of Primary Palliative Care End-of-Life Quality Measures: A Modified Delphi Process. Pediatrics 2022, 150 PMID: 36437228, DOI: 10.1542/peds.2022-058241.Peer-Reviewed Original ResearchConceptsComplex chronic conditionsEOL quality measuresPediatric palliative careEnd of lifeElectronic health recordsHealth care utilizationMultidisciplinary expert panelHigh-quality pediatric palliative careManual chart reviewQuality improvement initiativesModified Delphi processChart reviewCare utilizationSymptom managementPalliative careChronic conditionsIllness trajectoryPediatric measuresLife quality measuresDelphi processHealth recordsExpert panelImprovement initiativesQuality measuresInterprofessional servicesEnd‐of‐life care quality for children with cancer who receive palliative care
Ananth P, Lindsay M, Nye R, Mun S, Feudtner C, Wolfe J. End‐of‐life care quality for children with cancer who receive palliative care. Pediatric Blood & Cancer 2022, 69: e29841. PMID: 35686746, PMCID: PMC10498672, DOI: 10.1002/pbc.29841.Peer-Reviewed Original ResearchConceptsIntensive care unit admissionCare unit admissionLife care qualityDistressing symptomsCancer decedentsEnd of lifeUnit admissionMechanical ventilationCare qualityPalliative Care DatabaseDays of lifeLower household incomeAnnual household incomeHospice enrollmentHospital admissionMultivariable analysisPatient factorsUnivariable analysisPalliative careCare databaseHospice servicesLower oddsResearch DatabaseCancer typesHospital servicesSurvey of Pediatric Palliative Care Quality Improvement Training, Activities, and Barriers
Bogetz JF, Johnston E, Ananth P, Patneaude A, Workgroup T, Thienprayoon R, Rosenberg A. Survey of Pediatric Palliative Care Quality Improvement Training, Activities, and Barriers. Journal Of Pain And Symptom Management 2022, 64: e123-e131. PMID: 35577143, DOI: 10.1016/j.jpainsymman.2022.04.182.Peer-Reviewed Original ResearchConceptsPediatric palliative careQI activitiesHigh-quality pediatric palliative careQI effortsQI workPediatrics Task ForceHalf of participantsQuality improvement activitiesPalliative careQuality improvement trainingEducation/trainingSerious illnessImprovement NetworkElectronic surveyQI trainingOne-thirdHours totalTwo-thirdsCliniciansClinical disciplinesOne-quarterResearch NetworkTask ForceDedicated staffStandardized measures
2017
Trends in Hospital Utilization and Costs among Pediatric Palliative Care Recipients
Ananth P, Melvin P, Berry JG, Wolfe J. Trends in Hospital Utilization and Costs among Pediatric Palliative Care Recipients. Journal Of Palliative Medicine 2017, 20: 946-953. PMID: 28453361, DOI: 10.1089/jpm.2016.0496.Peer-Reviewed Original ResearchConceptsPediatric palliative carePPC consultationED visitsHospital admissionHospital costsHospital utilizationAnnual hospital admission rateIntensive care unit usePalliative care recipientsPercent of patientsRetrospective cohort studyAnnual ED visitsEmergency department visitsHospital admission ratesQuaternary children's hospitalYears of agePPC involvementCohort studyDepartment visitsMedian ageED useSingle centerChildren's HospitalPalliative careIll children