2024
Harnessing Natural Language Processing to Assess Quality of End-of-Life Care for Children With Cancer
Lindsay M, de Oliveira S, Sciacca K, Lindvall C, Ananth P. Harnessing Natural Language Processing to Assess Quality of End-of-Life Care for Children With Cancer. JCO Clinical Cancer Informatics 2024, 8: e2400134. PMID: 39265122, PMCID: PMC11407740, DOI: 10.1200/cci.24.00134.Peer-Reviewed Original ResearchConceptsEnd-of-life carePalliative care consultationGoals of careLocation of deathProportion of decedentsDocumented discussionCare consultationEvidence-based quality measuresMeasure quality of careGold standard manual chart reviewQuality measuresQuality of careEnd of lifeContent of clinical notesLife-sustaining treatmentEnd-of-lifeManual chart reviewCancer decedentsEfficient quality measureCohort of childrenAssess qualityMulti-center researchQuality improvementMeasure qualityCareQuality of Care in the Last Two Years of Life for Children With Complex Chronic Conditions
Bogetz J, Strub B, Bradford M, McGalliard J, Shipman K, Jeyte A, Patneaude A, Johnston E, Ananth P, Thienprayoon R, Rosenberg A. Quality of Care in the Last Two Years of Life for Children With Complex Chronic Conditions. Journal Of Pain And Symptom Management 2024, 68: 488-498.e1. PMID: 39097243, DOI: 10.1016/j.jpainsymman.2024.07.034.Peer-Reviewed Original ResearchComplex chronic conditionsEnd-of-life quality measuresEnd-of-lifeChronic conditionsHealthcare servicesQuality EOL careQuality measuresQuality of careICD-10 diagnosis codesEvaluate demographic differencesU.S. children's hospitalsYears of lifeEOL careDied in-hospitalInterprofessional supportSymptom managementHealthcare utilizationHospital performanceMedication intensityNon-HispanicDiagnosis codesDescriptive statisticsCardiopulmonary resuscitationChildren's hospitalPublic insuranceA Natural Language Processing Study to Assess Quality of End-of-Life Care for Children with Cancer (RP215)
Lindsay M, De Oliveira S, Ward D, Sciacca K, Lindvall C, Ananth P. A Natural Language Processing Study to Assess Quality of End-of-Life Care for Children with Cancer (RP215). Journal Of Pain And Symptom Management 2024, 67: e763. DOI: 10.1016/j.jpainsymman.2024.02.425.Peer-Reviewed Original ResearchEnd-of-life careGoals of care discussionsEnd-of-lifePalliative care consultationLocation of deathProportion of decedentsNatural language processingCode status limitationsCancer decedentsHospice discussionCare discussionsCare consultationDocumented goals of care discussionsEnd-of-life care qualityEvidence-based process measuresKeyword libraryLanguage processingElectronic health recordsManual chart abstractionMonths of lifeQuality measuresRule-based natural language processingCare qualityNatural language processing technologyNatural language processing studiesDefining the Denominator for Measuring Quality of End-of-Life Care in Children with Cancer: Results of a Nominal Group Technique
Johnston E, Tefera R, Ananth P, Martinez I, Porter A, Snaman J, Thienprayoon R, Asch S, Bhatia S, O'Beirne R. Defining the Denominator for Measuring Quality of End-of-Life Care in Children with Cancer: Results of a Nominal Group Technique. The Journal Of Pediatrics 2024, 271: 114038. PMID: 38554745, DOI: 10.1016/j.jpeds.2024.114038.Peer-Reviewed Original ResearchEnd-of-lifePoor-prognosis cancerEnd-of-life quality measuresQuality of EOL careQuality measuresPediatric oncologyPediatric palliative carePediatric quality measuresPrognosis cancersNon-Hispanic whitesNominal groupsSpecific treatment scenarioNominal group techniqueEOL carePalliative careSeventy-nine percentBereaved parentsMeasure qualityClinical programsEnhance qualityGroup techniqueGroup of childrenCareParticipantsClinician-scientists
2023
Measuring Pediatric Palliative Care Quality: Challenges and Opportunities
Boyden J, Bogetz J, Johnston E, Thienprayoon R, Williams C, McNeil M, Patneaude A, Widger K, Rosenberg A, Ananth P. Measuring Pediatric Palliative Care Quality: Challenges and Opportunities. Journal Of Pain And Symptom Management 2023, 65: e483-e495. PMID: 36736860, PMCID: PMC10106436, DOI: 10.1016/j.jpainsymman.2023.01.021.Peer-Reviewed Reviews, Practice Guidelines, Standards, and Consensus Statements
2022
Development of Primary Palliative Care End-of-Life Quality Measures: A Modified Delphi Process.
Bogetz J, Johnston E, Thienprayoon R, Patneaude A, Ananth P, Rosenberg A. Development of Primary Palliative Care End-of-Life Quality Measures: A Modified Delphi Process. Pediatrics 2022, 150 PMID: 36437228, DOI: 10.1542/peds.2022-058241.Peer-Reviewed Original ResearchConceptsComplex chronic conditionsEOL quality measuresPediatric palliative careEnd of lifeElectronic health recordsHealth care utilizationMultidisciplinary expert panelHigh-quality pediatric palliative careManual chart reviewQuality improvement initiativesModified Delphi processChart reviewCare utilizationSymptom managementPalliative careChronic conditionsIllness trajectoryPediatric measuresLife quality measuresDelphi processHealth recordsExpert panelImprovement initiativesQuality measuresInterprofessional services
2021
Refining Patient-Centered Measures of End-of-Life Care Quality for Children With Cancer
Ananth P, Mun S, Reffat N, Kang SJ, Pitafi S, Ma X, Gross CP, Wolfe J. Refining Patient-Centered Measures of End-of-Life Care Quality for Children With Cancer. JCO Oncology Practice 2021, 18: e372-e382. PMID: 34613797, PMCID: PMC8932486, DOI: 10.1200/op.21.00447.Peer-Reviewed Original ResearchConceptsMedian importance scoresPalliative care consultationHealth care usePatient-reported outcomesCross-sectional electronic surveyLife care qualityPatient-centered measuresHealth care teamHealth care professionalsHealth care resourcesCandidate quality measuresCancer stakeholdersSymptom screeningCare consultationsCare useCare teamLife careCare professionalsPatient needsCare resourcesFamily stakeholdersCare qualityMedian scoreQuality measuresElectronic survey