2024
App-based assessment of patient-reported outcomes in the Molecular Tumor Board in the Center for Personalized Medicine—(TRACE)
Dörner L, Grosse L, Stange F, Hille H, Kurz S, Becker H, Volkmer S, Hippler M, Rieger D, Bombach P, Rieger J, Weinert L, Svensson L, Anders C, Cekin S, Paulsen F, Öner Ö, Ruhm K, Malek H, Möller Y, Tatagiba M, Wallwiener M, Eckert N, Escher P, Pfeifer N, Forschner A, Bauer A, Zips D, Bitzer M, Malek N, Gani C, Tabatabai G, Renovanz M. App-based assessment of patient-reported outcomes in the Molecular Tumor Board in the Center for Personalized Medicine—(TRACE). Neuro-Oncology Practice 2024, 11: 336-346. PMID: 38737615, PMCID: PMC11085831, DOI: 10.1093/nop/npae002.Peer-Reviewed Original ResearchHealth care professionalsHealth-related quality of lifePatient-reported outcomesAssessment of patient-reported outcomesQuality of lifePRO assessmentSystematic assessment of patient-reported outcomesAssessment of health-related quality of lifeElectronic PRO assessmentMedian distress scoreMayring's qualitative content analysisApp-based assessmentsEORTC QLQ-C30 instrumentHealth-related qualityBurden of symptomsPilot studyQualitative content analysisGlobal health scoreQLQ-C30 instrumentSmartphone applicationNeuro-oncology patientsSemi-structured interviewsInterdisciplinary expert panelCare professionalsPatient perspective
2023
NCOG-32. THE SPECIFIC PSYCHOSOCIAL BURDEN OF CAREGIVERS OF ADULT NEURO-ONCOLOGICAL PATIENTS - A PROSPECTIVE STUDY
Spieker M, Rapp M, Goebel S, Karger A, Rieger D, Grosse L, Bombach P, Kurz S, Hippler M, Tatagiba M, Sabel M, Tabatabai G, Renovanz M. NCOG-32. THE SPECIFIC PSYCHOSOCIAL BURDEN OF CAREGIVERS OF ADULT NEURO-ONCOLOGICAL PATIENTS - A PROSPECTIVE STUDY. Neuro-Oncology 2023, 25: v221-v221. PMCID: PMC10639804, DOI: 10.1093/neuonc/noad179.0845.Peer-Reviewed Original ResearchProblem listLoved-oneQualitative interviewsNeuro-oncology caregiversPsychosocial screening toolQualitative content analysisOptimization of careNeurooncology patientsPatients' caregiversInductive/deductive approachProblem categoriesPsychological supportCaregiversOutpatient visitsUnmet needsCoping strategiesScreening toolPsychological problemsLeisure activitiesContent analysisThermometer scaleCancer patientsTargeted assessmentInterviewsProspective studyP08.03.A CAREGIVERS OF ADULT NEURO-ONCOLOGICAL PATIENTS: UNMET NEEDS AND RELEVANT PROBLEMS - A PROSPECTIVE STUDY
Spieker M, Rapp M, Rieger D, Bombach P, Kurz S, Tatagiba M, Sabel M, Tabatabai G, Renovanz M. P08.03.A CAREGIVERS OF ADULT NEURO-ONCOLOGICAL PATIENTS: UNMET NEEDS AND RELEVANT PROBLEMS - A PROSPECTIVE STUDY. Neuro-Oncology 2023, 25: ii55-ii56. PMCID: PMC10489286, DOI: 10.1093/neuonc/noad137.178.Peer-Reviewed Original ResearchQualitative interviewsUnmet needsHolistic needs assessmentPsychosocial screening toolQualitative content analysisCaregiver burdenPsycho-oncologistsPatients' caregiversProblem listNeeds assessmentPsychological supportCaregiversDepressive symptomsOutpatient visitsSpiritual problemsCoping strategiesEmotional problemsScreening toolSource of strengthPsychological problemsLeisure activitiesContent analysisThermometer scaleInterviewsTargeted assessment