Perspectives of Patients With Relapsed and Refractory Acute Myeloid Leukemia and High-Risk Myelodysplastic Syndrome on Patient–Clinician Communication About Prognosis and the Future
Rao V, Linsky S, Knobf M. Perspectives of Patients With Relapsed and Refractory Acute Myeloid Leukemia and High-Risk Myelodysplastic Syndrome on Patient–Clinician Communication About Prognosis and the Future. Palliative Medicine Reports 2024, 5: 53-62. PMID: 38249836, PMCID: PMC10797310, DOI: 10.1089/pmr.2023.0064.Peer-Reviewed Original ResearchPatient-clinician communicationHigh-risk myelodysplastic syndromeAcute myeloid leukemiaPerspectives of patientsMyelodysplastic syndromeU.S. cancer centersSemi-structured interviewsFog of uncertaintyMaintaining normalityDisease trajectoryMyeloid leukemiaPrognostic uncertaintyThematic analysisQualitative studyParticipants' perspectivesR/R acute myeloid leukemiaRefractory acute myeloid leukemiaCancer CenterLived experienceDay-to-day lived experiencesParticipantsHigh riskInterviewsHealthCommunication strategies