Refining Patient-Centered Measures of End-of-Life Care Quality for Children With Cancer
Ananth P, Mun S, Reffat N, Kang SJ, Pitafi S, Ma X, Gross CP, Wolfe J. Refining Patient-Centered Measures of End-of-Life Care Quality for Children With Cancer. JCO Oncology Practice 2021, 18: e372-e382. PMID: 34613797, PMCID: PMC8932486, DOI: 10.1200/op.21.00447.Peer-Reviewed Original ResearchConceptsMedian importance scoresPalliative care consultationHealth care usePatient-reported outcomesCross-sectional electronic surveyLife care qualityPatient-centered measuresHealth care teamHealth care professionalsHealth care resourcesCandidate quality measuresCancer stakeholdersSymptom screeningCare consultationsCare useCare teamLife careCare professionalsPatient needsCare resourcesFamily stakeholdersCare qualityMedian scoreQuality measuresElectronic surveyA Stakeholder-Driven Qualitative Study to Define High Quality End-of-Life Care for Children With Cancer
Ananth P, Mun S, Reffat N, Li R, Sedghi T, Avery M, Snaman J, Gross CP, Ma X, Wolfe J. A Stakeholder-Driven Qualitative Study to Define High Quality End-of-Life Care for Children With Cancer. Journal Of Pain And Symptom Management 2021, 62: 492-502. PMID: 33556497, PMCID: PMC8339188, DOI: 10.1016/j.jpainsymman.2021.01.134.Peer-Reviewed Original ResearchConceptsHigh-quality endQuality EOLCAdvanced cancerSymptom managementLife careQuality endLocation of deathMulticenter qualitative studyAvoidance of hospitalizationPerson-centered measuresCancer stakeholdersEnd of lifeSupportive careMechanical ventilationParents of childrenEmergency departmentInterdisciplinary careInterdisciplinary healthcare professionalsCardiopulmonary resuscitationHospice careQualitative studyCancerHealthcare professionalsFamily preferencesYoung adults